Sisters Precious and Favour
Sisters Charlotte & Hattie
Brother and sister Sarah and Sam.
sisters Jenna and Lauren
Rishabh and Kaustubh
Sisters Maureen and Aileen
Christian, Sebastian & Santiago
Cassie & Lorie
Sisters Precious and FavourPrecious has albinism.
Sisters Charlotte & Hattie
Sisters Charlotte & Hattie are the best of friends, Hattie has Down's Syndrome.
Sisters Charlotte & Hattie are the best of friends, Hattie has Down's Syndrome. The two girls spend hours together, horse riding, doing make-up and having fun. Whilst I was making the images Hattie said “Its like being famous”. Charlotte asked what would you buy if your were famous and had loads of money”. Hattie replied “A face like yours”.
Brother and sister Sarah and Sam. Sam has very sadly recently passed away. Sam had ATRX.
sisters Jenna and LaurenLauren has an unknown condition.
Rishabh and KaustubhRishabh and Kaustubh are brothers. Rishabh has Down’s Syndrome, but the two boys are inseparable. I spent a very a enjoyable time last weekend with these two fun filled lads and their family. The weather was cold, but it didn't stop them for one minute. Here are just a few of the images.
Sisters Maureen and Aileen Aileen has Down’s Syndrome, both sisters are in their fifties.
Christian, Sebastian & SantiagoChristian has a very rare condition called DOOR Syndrome and lives at home with his two brothers Sebastian and Santiago. There have only been around 50 cases of DOOR Syndrome recorded since the 1970's. Christian is one of three cases with this syndrome in the UK and is one of the most severe cases in the world. Doctors didn't expect him to live more than one year, but he is now on eight. "DOOR" is an acronym for (D)eafness, (O)nychodystrophy ormalformation of the nails, (O)steodystrophy, malformation of bones; and mild to profound mental (R)etardation. In addition, in some cases, affected infants may have sudden episodes of uncontrolled electrical activity in the brain (seizures).During my time with the boys, Santiago and Sebastian took turns to push Christian in his chair and took great delight in getting him to smile. With great physical effort, they hauled his chair down to the sea’s edge and pushed him along the sands. Christian particular enjoyed being pushed along at great speed, or over bumps. Here are just a few images from my time with them.
Cassie & LorieCassie (Cassandra, 6 yrs old) and Lorie (Lorelei, 2 yrs old) are sisters and have a lovely connection between them. Cassie has a range of different issues including Charge Syndrome, Hypotonic Cerebral Palsy, Global Development Delay and a variety of respiratory problems. She also has Hypermobility and Sensory Processing disorders and is short sighted. The two girls play together and Lorie knows Cassie loves to taste, smell and feel objects, so she looks for things of interest and brings them to her sister. They enjoy each other’s company and will sit and watch TV together holding hands. Here are just a few images from the time I spent with them.
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